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Huntington's Disease Caregiving

Personality Issues
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What Is A Caregiver?
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Swallowing Difficulties~Physician's Guide
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Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
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When To Consider A Feeding Tube
Feeding Tube Decision in HD
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This, in conjunction with Dr. Paulsen's article on Understanding Behavior Changes in Huntington's Disease, should be the two principal documents for every family of a loved one with HD.  Both documents explain, from different perspectives,  what is happening to a person with HD during the course of the illness.  Both of these documents provide better insight into the personality changes perceived or real. 
Dr. Paulsen's handbook converted to a Word document therefore it has 46 pages vs the PDF document which has 71 pages. This means that the refernce to other pages in this book will not be the same.  You can still read this book online (See HD Guidebooks), download the PDF document, or order it from the HDSA.  In any case......make sure it is part of your HD Caregiving triad of material along with Dr. Snowden's and the Physician's Guide To HD!

Understanding Behavioral Changes-Dr. Chiu 
Although one of the earliest HD handbooks for families, written in 1989,
still has some good information for all HD families today.  Discussess:
Behavioral Problems, Care, Goalsm, Melborne Care, Scapegoating, Brain Cells
Consequences, Inhibition, Learning andFamily Physicians

You may also want read Dr. Chiu article discussing quality of life in HD care: "We put quality of life as the main criteria for decision making regarding their lives. What makes for quality of life is worth doing. What detracts from quality of life in not worth doing." 27-Nov-01  A Dr. Chiu Treasure