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Huntington's Disease Caregiving

Personality Issues
What Is A Caregiver?
What Is An HD Caregiver?
Caregiving For A Spouse
Caregivers Bill of Rights
Helping Your Loved One
Your pHD Is Unique!
About Huntington's Disease
HD Articles of Interest
HD Guidebooks
Post Emergency Info
Early/ Early Intermediate Stages
Late Intermediate Stage
Swallowing Diagnostic
Speech & Language in HD
Swallowing Safety in HD
Early Advanced Stage
Swallowing Difficulties~Physician's Guide
Warning Signs of Swallowing Problems
Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
Texture & Consistency/Thining & Thickening Foods
Drinks/Shakes Recipes
Adaptive Equipment-Mealtime Help
Food Thickners
What Is A Feeding Tube?
When To Consider A Feeding Tube
Feeding Tube Decision in HD
Feeding Tube Resources
Advanced Stage
Late Stage Care
Commom Problems Encountered~Hospice Care
Temporary List of Resources
Personality Issues
Legal Issues
Disability Issues
At Home Care
Outside Care
Caregiver Tips
Caregiver Support
HD Facts
Helpful Forms-Download
Personal Articles/Stories
Miller Messages
HD Links
Fix It-R-Us?
How-To Tips
Have An HD Question?
Beautiful Memories
Caregiver's Chat Room
HD Caregiver Newsletter
Daily Humor & Health News
Dreams & Signs (Fun Stuff)
Share A Link
Send An HD Greeting Card
Location Map
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This, in conjunction with Dr. Paulsen's article on Understanding Behavior Changes in Huntington's Disease, should be the two principal documents for every family of a loved one with HD.  Both documents explain, from different perspectives,  what is happening to a person with HD during the course of the illness.  Both of these documents provide better insight into the personality changes perceived or real. 
Dr. Paulsen's handbook converted to a Word document therefore it has 46 pages vs the PDF document which has 71 pages. This means that the refernce to other pages in this book will not be the same.  You can still read this book online (See HD Guidebooks), download the PDF document, or order it from the HDSA.  In any case......make sure it is part of your HD Caregiving triad of material along with Dr. Snowden's and the Physician's Guide To HD!

Understanding Behavioral Changes-Dr. Chiu 
Although one of the earliest HD handbooks for families, written in 1989,
still has some good information for all HD families today.  Discussess:
Behavioral Problems, Care, Goalsm, Melborne Care, Scapegoating, Brain Cells
Consequences, Inhibition, Learning andFamily Physicians

You may also want read Dr. Chiu article discussing quality of life in HD care: "We put quality of life as the main criteria for decision making regarding their lives. What makes for quality of life is worth doing. What detracts from quality of life in not worth doing." 27-Nov-01  A Dr. Chiu Treasure